Seek another opinion on cause of stomach fluid

Q: My stomach filled up with about 6-1/2 liters of fluid. The doctor said it was the same as carrying a 6-1/2-pound baby.

I had terrible abdominal pains and noticed that the fluid was increasing. I underwent numerous tests again. A surgeon performed a special procedure that involved several small incisions in my abdomen so a camera could be used.

They found that there appeared to be a mesh net connected to my liver, intestine and some other organs. Biopsies were taken, but they thought it was cancer and told me as much. Turns out the tests were negative. I was told that it would probably kill me if they tried to remove it. They did one final draining before sending me home.

It has now been 10 weeks, and I still have the fluid. I still don't have any answers. I am 80 years old and take several prescriptions . My stomach has reduced three inches since it was first drained, but it is still swollen. The pain has decreased.

A: I might be able to at least point you in the right direction for getting further help. Based on your description, I believe you are suffering from ascites, which is excess fluid within the abdominal cavity. It is often the result of liver disease but can also be associated with various cancers, congestive heart failure, kidney disorders, pancreatitis and obstructions.

Based on your description of a meshlike net of tissue connecting several of your abdominal organs together, I believe the underlying cause may be due to adhesions -- abnormal scar tissue attaching two or more organs inappropriately. Most people with adhesions never know they are there. Others may experience pain or other complications depending on the location of the scar tissue. They are caused primarily by prior abdominal surgery, but can also result from certain infections, appendicitis, radiation treatment, and rarely, for no known reason. If the intestines are involved, it can result in obstruction. Seek out another opinion.Seek help at a nearby university hospital or other teaching hospital.

You should be examined thoroughly and undergo blood work, imaging studies such as X-rays and MRIs, perhaps have another biopsy of the lesion previously noted, and also have some of the fluid removed and examined, which may help determine the cause.

Remember to ask questions and demand answers. If you want to know and understand the situation, it is up to you to ask. Find a physician who will work with you to solve the problem rather than simply dismiss it. Your quality of life is suffering.

In the meantime, continue your medications, which include two diuretics, either for hypertension or specifically for your excess fluid buildup, an anti-anxiety medication, a potassium supplement (given in conjunction with the diuretics), a thyroid-hormone supplement, a steroid given to those with Addison's disease and a beta blocker used to treat certain heart-rhythm disorders. You should also avoid drinking alcohol and limit salt intake, because both can cause fluid retention. Ask Dr. Gott